Policy & Advocacy 

Disability rights are human rights!

Advocacy is vital in improving and sustaining quality of life for Oklahomans with intellectual and developmental disabilities (IDD). To be effective, advocacy must take place at both the individual and system levels and be aimed at public officials, support systems and the general public.

Without it, Oklahomans with IDD may not have access to needed supports as well as opportunities to exercise inherent civil and human rights. Additionally, strong advocacy may be required to prevent and/or address abuse, neglect and exploitation that people with intellectual and/or developmental disabilities may experience.

 

KEY POLICY ISSUES FOR OKLAHOMANS WITH IDD

All branches of government play critical roles in affirming, securing, and achieving the vision of inclusion and ensuring that the civil rights of persons with intellectual and developmental disabilities (IDD) are realized.  Learn about the top issues we focus on in our fight for the civil rights of Oklahomans with IDD.

 

Civil Rights

Civil rights must be preserved through vigilant enforcement of laws and regulations as well as strong opposition to efforts that limit the rights of people with IDD.

Community-Based Long Term Supports & Services

These must be widely accessible, consumer controlled, and provided in the community without the requirement that people with IDD impoverish themselves in order to obtain assistance with activities of daily living, such as getting dressed, taking medication, and preparing meals.

Direct Support Professionals

These professionals must be well trained and fairly and adequately compensated to provide the necessary supports and services for people with IDD where they work and live.

Education

The education system must help people with IDD to achieve their full potential and independence by having high expectations, integrated instruction by certified and effective teachers, inclusive classrooms, appropriate assessments, and only using positive behavioral supports.

Emergency Management

The needs of people with disabilities, their families, and the direct support workforce must be considered as a priority in planning for and responding to natural, public health, and human-made disasters and emergencies.

Employment, Training, and Wages

Employment programs must be expanded to provide more job development, placement, and coaching, skills training, and other services necessary to help find and maintain competitive, integrated employment for people with IDD.

Family Support

Counseling, support groups, respite, training, cash assistance, and information and referral must be made widely available to family caregivers, especially those who are aging, and who provide supports in the community. This will help avoid costly and unwanted institutional placements of individuals with IDD.

Health Care

People with IDD must have timely access to high quality, comprehensive, accessible, affordable, and individualized health care services to improve and maintain health and functioning.

Housing

An adequate supply of safe, accessible, integrated, and affordable supportive housing in the community for people with IDD must be available.

Medicaid

This program is the single largest funding source of both acute health care and long term supports and services for people with IDD. It must be preserved and rebalanced to make home and community based services the norm and institutional services the exception.

Research & Training

There is a need for more comprehensive federal research, surveillance, analysis, education, and training concerning people with IDD across the lifespan.

Social Security & SSI

This system provides the primary income sources for many people with significant disabilities to meet their basic needs for food, shelter, and clothing. Benefits and eligibility must be maintained and the long-term financial future of these programs must be considered outside of deficit reduction efforts.

Tax Revenue

Sufficient tax revenue must be raised in order to appropriately fund social insurance (Social Security, Medicare), safety net (Medicaid, Supplemental Security Income (SSI)), and discretionary programs (such as housing, education, employment, and transportation) that people with IDD rely on for their health, safety, and wellbeing.

Technology

Technology must be accessible and made widely available to make communication, education, independent living, and employment opportunities available for people with IDD.

Transportation

Accessible transportation programs must be expanded and anti-discrimination policies must be enforced to help people with IDD access employment, health care, recreational activities, and other aspects of community living.

 


For more information on Public Policy and Advocacy,
contact Dena Drabek at (918) 582-8272.

The Arc of Oklahoma  provides education, advocacy, and support on Autism Spectrum Disorder (ASD) • Fragile X Syndrome • Tourette Syndrome • Spina Bifida • Cerebral Palsy (CP) • Attention Deficit Hyperactivity Disorder (ADHD) • Apert Syndrome • Hearing Loss • Learning Disability (LD) • Vision Loss • Developmental Delay (DD) • Pervasive Developmental Disorder • Cystic Fibrosis (CF) • Developmental Disabilities (DD) • Epilepsy • Attention Deficit Disorder (ADD) • Intellectual Disabilities (ID) • Fetal Alcohol Spectrum Disorder (FASD) • Prader-Willi Syndrome • Asperger Syndrome • Williams Syndrome • Fragile X Syndrome and many more